our involvement
Since its inception, HL7 Europe has engaged in EU-funded projects to advance and drive the development and further adoption of digital health interoperability standards and specifications, and to contribute to the development of a European digital health and data infrastructure.
Find out more about our current projects, or click below for a list of our past projects.
The Pact for Skills aims is a European Commission initiative to get public and private organisations together and encourage them to make concrete commitments to upskilling and reskilling adults, so they can thrive through the green and digital transitions.
The Gravitate Health is a public – private partnership with 41 members from Europe and the US, co-led by University of Oslo (coordinator) and Pfizer (industry lead), funded by the Innovative Medicines Initiative (IMI) – a joint undertaking of the European Commission, the European Federation of Pharmaceutical Industries and Associations (EFPIA), IMI2 Associated Partners.
Thanks to better cancer treatments, more than 80% of children and adolescents in in Europe who get cancer will now survive more than 5 years. It’s estimated there are currently more than 500,000 survivors of childhood and adolescent cancer across Europe, and this number is growing. But cancer treatments are harsh and there are long-term affects that mean that survivors require closer health monitoring than the average population. There are clinical guidelines that tell healthcare professionals what care is needed, but it’s challenging to put them into practice in routine survivorship care. The digital Survivorship Passport (SurPass) can help!
PanCareSurPass is an EU-funded project looking at how to more widely implement the SurPass to improve survivorship care for survivors of childhood and adolescent cancer in Europe.
The 2019 Commission recommendation on the European Electronic Health Record Exchange Format proposed a process for interoperability specifications; The EHDS regulation is giving it legislative force. The Commission has been funding research actions to develop and refine the EEHRxF. The XpanDH project supports an expanding ecosystem developing, experimenting and adoption the EEHRxF between 2023 and 2024; the xShare project is building a European standards and policy hub. Both projects convene major SDOs and a wide variety of experts and stakeholders.
The IDEA4RC project is developing a rare cancer data ecosystem for the sharing and re-use of health data among clinical centres, to promote research on rare cancers and improve patients’ access to high quality care. This infrastructure will seek to overcome interoperability issues and make it easier to comply with privacy regulations. The project will deliver results by the end of 2026.
The NextGen project is building novel and synergistic tools to enable portable multimodal, multiomic and clinically oriented research in high-impact areas of cardiovascular medicine. NextGen tools will benefit researchers, innovators and healthcare professionals by identifying and overcoming health data linkage barriers in exemplar use cases which are complex or intractable with existing technology. Consequently, it will benefit patients, providing faster diagnosis, and better treatments (including personal medicine).
The project started in January 2024 and will take four years. The NextGen embedded governance framework and robust regulatory processes will ensure secure multi-jurisdictional phenotype and genomic data access aligned with initiatives including “1+ Million Genomes” and the European Health Data Space.
The FLUTE project will advance and scale up data-driven healthcare by developing novel methods for privacy-preserving cross-border use of data hubs. The focus is on improving predictions of aggressive prostate cancer through AI support to physician, while minimising unnecessary biopsies. The project will deliver a secure environment for federated healthcare AI solution development, testing and deployment, including the integration of real world health data from the data hubs and the generation and utilisation of synthetic data. To demonstrate the practical use and impact of the results, the project will integrate the FLUTE platform with health data hubs located in three different countries, use their data to develop a novel federated AI toolset for diagnosis of clinically significant prostate cancer and perform a multi-national clinical validation of its efficacy. Led by INRIA (FR), the project will deliver results by 2026.
OneAquaHealth aims to improve the sustainability and integrity of freshwater ecosystems in urban environments. By investigating the interconnection of ecosystem health and human wellbeing, the project will identify early warning indicators and enhance environmental monitoring with AI-assisted tools. As a result, the project will support decision-makers in finding adequate and timely decisions as well as effective measures to restore aquatic ecosystems health and promote OneHealth.
The project is a Research and Innovation Action funded under the Horizon Europe programme, led by the University of Coimbra (PT) from 2023 until 2026.
